Amazed

Reflecting on God’s mysterious ways. This week, I was helping my youngest, who is how a freshman in High school, with her History homework. The assignment was to write about the story behind the song “Amazing Grace”. She had to research the life story of John Newton, all his trials, and the emotion behind the song, and then pick a stanza from the song and analyze it using examples from his life. God took three of my favorite things, Music, History, and my child, and put them together to speak to my heart.

We learned about how after his mother died when he was 7 years old,  Newton turned from the faith of his mother and rebelled, running from God, drinking heavily, and how he was enslaved, beaten, betrayed, and then became a captain of a slave trade ship. We learned how through the course of his life, Newton faced death multiple times, be it due to storms at sea, or sickness, and how God used these extreme trials to draw Newton back to his faith. We saw how Newton’s life was redirected as he went from slave trade captain to minister, and a voice against slavery in the abolition movement.

The stanza my daughter chose to analyze was this….

Amazing grace!

How sweet the sound That saved a wretch like me! 

I once was lost, but now am found; 

Was blind, but now I see.”

and here is her analysis….

Amazing grace, what is so amazing about grace? To me, grace is mercy, or kindness that is undeserved or unearned. Grace is amazing we do not deserve it, and we can’t earn it because God gives it freely. How sweet the sound; grace that we do not deserve and cannot earn is like music to a hurting soul.

         That saved a wretch like me! A wretch is a bad or very unpleasant person. John Newton was an excellent example of a wretch. He was punished for desertion. He was so terrible as a crew member that one of the crews he served with chained him up, starved him, and sold him into slavery. After he was rescued from slavery, instead of trying to stop the slave trade, Newton became part of the slave trade. Despite the fact that he did so many terrible things in his life, God still heard his cry, and saved him.

     I once was lost, but now am found; In the early years of Newton’s life, he was lost. He was running from the faith he had learned as a child before his mother died. In the later years of newton’s life he became a minister, sharing his story of how God found him and saved him. Was blind, but now I see. Newton spent many years as an active part of the slave trade, transporting slaves and supporting the industry. He came to see how evil slavery was and started to speak out against it, describing how horrible the conditions on the slave ships were, and worked to help stop slavery.”

As I reflected on all of this, I began to look back over my own life. In my teen years, I rebelled against my parents, and ran from the faith of my youth. I started drinking heavily in college, found myself in an abusive relationship with no hope of escape, gave in to all sorts of temptations, and for a long time, ignored the still small voice in my heart. Through all of this, God never once abandoned or gave up on me. He sent two dear friends to show me a way out of the abusive relationship. I joined the Marines , and while at Boot Camp, I cried out to God for strength as I tried to recover from deep emotional abuse scars at the same time I was going through Boot Camp. It all became too big for me, and at one point, I actually told my Senior Drill instructor ” I quit, I want to go home”. I am forever thankful that instead of letting me quit, she pushed me harder. I hit bottom and I cried out, and God met me.

After Boot camp, I went through a period where I returned to my wild side. My young, renewed faith was still there, and I heard the still small voice, but I was not completely ready to stop drinking, and to give up my wild ways. In this time in my life, broken, damaged, recovering from abuse, God brought a young man into my life who would forever change my world. This young Marine would become my husband. He didn’t run from my scars, but promised to stand by me, to hold me through the nightmares, to love me through my fear, to patiently wait as my trust was restored, for when we met, I no longer trusted anyone in the male gender except my daddy.

Grace is truly an amazing thing. As I look back over everything from my past, all the trials and snares that God has brought me through, I find myself in complete awe and wonder that God never once gave up or abandoned a wretch like me.

It wasn’t until after my husband and I were married, that I once again hit bottom. I sank into a deep depression, to the point I intended to end it all, to take my own life. A phone call to my unit from my husband landed me on suicide watch, and forced me to cry out once more to God, to turn back to my faith rather than ending my life. This was the point at which I found my faith, and never again turned away from it. Sure, I have moments when it wavers, when doubts and fears creep in, but I was no longer lost.

Since that moment, I have grown as Trials and storms continue to come. Two of my children diagnosed on the autism spectrum has depend my reliance on God for strength, wisdom, patience, and so much more. Mountains and struggles in my marriage has taught me how to pray for my husband, and more importantly, how to pray that God change ME. I stopped praying ” Lord, Fix HIM”, and started praying that God make ME the wife I need to be.

I am starting to realize that much like God used Newton’s time in the slave trade industry, He is using my abusive past. He has given me opportunities to help other women break free. He is using my stories to help my own daughters navigate the dating world, to help teach them what red flags to be aware of. I have watched my girls grow into strong, self confident young women who love deeply, and who are years ahead of where I was at their age in the ” I am happy with who God made me to be” aspect. This is a concept I didn’t grasp until well into my 30’s. I listened to my youngest thank me for sharing my stories with her and teaching her that her value comes from God, not from some boy.

I once was blind, running scared, broken and damaged….

but now, I am found, loved, beautiful….

I once was lost and alone, but now I am found. I am not perfect by any means. I still have days when the scars of my past haunt me, when I struggle and doubt. The difference is, Now I know how to combat those negative voices. Amazing Grace indeed, that pulled me from my darkest hours and carried me through the trials and snares, even when I was unaware, unwilling, and rebelling.

I will never look at this song the same way again…..It was written by the former Captain of a Slave ship, and God used it in my own life to remind me how He rescued me from the slavery and captivity of abuse.

**I went to You Tube, to find a video of Amazing Grace to end this post with, and found this one….and as I watched it, I got chills, and also learned some amazing interesting facts about the melody that goes with the Lyrics, and So, I will leave You with this….**

Wedding Reflections

Last weekend on Sunday, July 28,2013, My Youngest brother Got married, and I had the Honor of being a part of the Bridal Party, along with my Husband and youngest Daughter.

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As I sit here going through, and editing Photos from The day, and from Our trip to visit my Family, a few things keep running through my mind.

The Wedding was a Beautiful one, held in one of our Father’s Hay-fields.  The Morning of the Ceremony, However, It Rained. This added stress to the Bride and Groom. I am proud of my brother though. He faithfully watched the Radar, and the sky, and with the help of my father, the decision was made to wait it out, and sure enough, after an hour delay, the sky cleared, and the sun came out.  There is a lesson here. As they begin their married life, Through the years, they will have storms, rain will fall, but if they remember to dance through the rain together, the clouds will clear, and the sun will shine again.

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Another Thought from the day comes from my brother Himself. He posted this as His Facebook Status on Friday, August 2…“FB annoys the crap out of me some days, and there’s days when the only thing keeping me from outright deleting it is family and friends scattered about the country and world…..but I don’t think I will ever get over how awesome it is to see Hilary R. Settle sharing my name  if FB is still around when I’m 50, I’m still going to log on and think that is just awesome….I keep fiddling with the gold band on my finger….It holds a special meaning to me, not only is it my wedding band and a symbol of our love, but it was my grandfathers ring, the history I am wearing on my finger, and the future it signifies….it’s mind blowing, I only hope I can live up to being even half the man he was”

This is priceless. Our Grandfather’s love for Grandma came up during the ceremony as well, as My Other Brother was one of the officiants. What a Timeless example our Grandparents  left for us of a long and lasting love. We are their legacy, and I remember Grandpa welcoming my Husband into the family with open arms, and can only imagine the joy He would have shown at the wedding as David Married Hilary.

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There were many precious memories of the day, as there Usually are with Weddings. Aside from the typical First Kiss, First Dance, Cutting the cake type ones traditionally , There are a few that stand out for me….Like My Parents having all of their kids together for the first time ( spouses included) in a LONG time.

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and all 6 Grandchildren together…

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Watching My Parents Dance….

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Seeing the Love of my Life in His Uniform….

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Watching My Dad dance with His 3 youngest Granddaughters….

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Dancing with My Daddy….

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Watching Dak on the Dancefloor….

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and SO Many more…..

One of My favorite Moments came at the end of the night, as the reception was winding down, and my brother and His bride were getting ready to leave on their honeymoon. My Parents gathered all 4 of us siblings up, and my new sister, and Gave us Our Blessing. This is something they started when we were kids, and I have continued with my children, and it made me smile to hear it from my parents that night, even as a grown up, as we sent my brother and His new bride off to start their Life together. To me it was a wonderful way to send them off, to wrap up a beautiful day….

Numbers 6:24-26 

 The Lord bless you, and keep you:

The Lord make his face shine upon thee, and be gracious unto you:

The Lord lift up his countenance upon you, and give you peace.

A Legacy of Love, a Lifetime of Prayer

*Note , This may seem scattered and random, and should have been posted in April. For reasons hinted at in “Regaining Strength” , i never finished it, but am posting it now, because…even in it’s raw, scattered form, needs to be said. and besides, since when is grief ever “neat and organized” anyway?*
There is a group of people in my life who never gave up on me…
even through my wild rebellious years as a teenager,
no matter how angry I got, or how far out of control I spun,
They never stopped loving me, never stopped praying for me….
This is for them….
My Grandparents,
My Godparents,
my Mom and Dad ,
my siblings
The entire Jones/ Handy Family ( in my heart my 2nd Family).
I know that without all the love and non stop prayers,
my life would be totally different than what it is today,
and I thank God daily for blessing me with so many people who made sure I had firmly grounded roots,
but still gave me wings so I could soar….
The adults gave me roots and wings…
The kids filled my childhood with Friendship,
LOTS of memories,
They say there are people who leave footprints on your heart…
These are people who have left more than footprints…
This IS my Family, and I am Forever Blessed and Thankful….
Thankful for the Love,
the Laughter,
The memories,
the Friendship,
the Prayers and so much more…

Ok, this is for all you people who avoid the Camera,or hide behind it instead of putting yourself IN photos….
myself included…
There are people who love You who will want Photos of you to look back on when You are gone.
Don’t make them wish they had more Photos to cherish.
Finding myself wishing i had more of two special people in my life, both of whom has already left this earth.
This Photo is the only one I have, that I KNOW of….
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My Goal from this point on is to put ME in more photos with my kids….with the people I love.
This week has been one of reflecting, remembering, rejoicing, and mourning.  On Thursday (April 11,2013), I wrote this on Facebook ” As The Lord prepares to call a Precious Very Special Lady home, My heart cries, and rejoices at the same time. You see this dear Lady is my Godmother, and played a HUGE Role in my life. Her Love and Prayers, even when I was being unlovable are part of why I am the woman I am today……I Can’t help wondering if she knows how deeply she impacted my life. I regret not telling her often enough…and though I can’t make it to NY, I want to say THANK YOU, I Love You, and will never forget you!”
April 13,2013: At approximately 12:30 this morning my Godmother, Janice Handy went home to be with the LORD. She was a wonderful, gracious lady and taught us all very well how to survive in the world, but mostly how to live a life of faith. She fought the good fight, she won the race. She sees Jesus face to face. She was one of the Most Influential women in my Life and I am Thankful and blessed that my Parents chose her and her husband as my Godparents.
She leaves behind 25 grandchildren and 48 great grandchildren, three who predeceased her. She leaves behind a legacy of faith.
My Godfather went to be with the Lord my Senior Year of High school. At approximately 12:30 this morning My Godmother Joined him. When I think about the legacy they left, the Impact they had on my life, I count myself Very Blessed.
To Quote My Friend, Their Granddaughter, Jennifer: “My grandfather once felt that he was going to leave nothing behind for his family when it was his time to pass away. In reading all the posts here today, it is obvious that money cannot buy what he & my grandmother left behind. In the 65 years since the day they married, they had 6 children, who in turn had 25, who in turn have had 48. 3 of these met Jesus before they did. Most of these know Jesus as their Savior. Keith & Janice Handy were successful in passing on their faith and their love of family. What could be better than a legacy like this? I should be so blessed to do the same. “
They Truly Built a Household of Faith.

Peace be still…

The Past few months I have been doing quite a bit of thinking, reflecting, re-directing. My son turned 13 in September, in the middle of a stretch of REALLY rocky road on this journey with Autism. School had started in August, and one month in, He still had not settled back into routine, and it was clear from almost day one, something was wrong. He protested that school was bad, and cried daily, BEGGING to stay home. He started running from class, his behavior went downhill FAST, and He started trying to hurt himself at school, all so He could come home. He was not sleeping at night…which of course meant, I was not sleeping at night.

All the no sleep gave me plenty of time to think, to cry, and to pray. I looked back at when the journey began. I thought about how long I had been fighting…with Doctors, insurance companies, schools. I realized I was Exhausted, I longed for a break from the “front lines”.  I lost sight of just how far we have come, the progress made. My focus was off. I spent more time focusing on how tired I was, on the storms raging around me than on my source of Hope. Exhaustion took over, and I started to get angry. I felt lost and alone.  I felt helpless. The worse things seemed to get for my son at school, the more helpless I felt. I was sinking, and I knew it. What I didn’t know, was how to turn my focus back to where it needed to be.

One night I was talking to a friend about it all, venting and crying, and she said to me “Stop. It’s time for you to remember you are not alone. It’s time for you to stop focusing on how hard it is, and focus on what you need to do. Your kids need you to not fall apart.” My mom listened to me day in and day out, crying on the phone sometimes for hours, she never stopped praying, never stopped encouraging.

One Sunday in Sunday school, my Sunday School teacher said ” I don’t know why but before we start I feel I need to read a passage of scripture that is totally unrelated to what we are studying.” He read Habakkuk 3:17-18 which reads as follows:

Though the fig tree does not bud
    and there are no grapes on the vines,
though the olive crop fails
    and the fields produce no food,
though there are no sheep in the pen
    and no cattle in the stalls,
 yet I will rejoice in the Lord,
    I will be joyful in God my Savior.

It was a wake up call for me, a Reminder that I need to give thanks to God NO MATTER WHAT.  That even in the darkest hours, I should be praising God, in the Midst of the storm. My Focus should be on HIM and not on the waves crashing around me. I was reminded of a Psalm that My Dad used to read to us all the time when I was Growing Up:

Psalms 34

I will bless the Lord at all times: his praise shall continually be in my mouth.

My soul shall make her boast in the Lord: the humble shall hear thereof, and be glad.

O magnify the Lord with me, and let us exalt his name together.

I sought the Lord, and he heard me, and delivered me from all my fears.

They looked unto him, and were lightened: and their faces were not ashamed.

This poor man cried, and the Lord heard him, and saved him out of all his troubles.

The angel of the Lord encampeth round about them that fear him, and delivereth them.

O taste and see that the Lord is good: blessed is the man that trusteth in him.

O fear the Lord, ye his saints: for there is no want to them that fear him.

10 The young lions do lack, and suffer hunger: but they that seek the Lord shall not want any good thing.

11 Come, ye children, hearken unto me: I will teach you the fear of the Lord.

12 What man is he that desireth life, and loveth many days, that he may see good?

13 Keep thy tongue from evil, and thy lips from speaking guile.

14 Depart from evil, and do good; seek peace, and pursue it.

15 The eyes of the Lord are upon the righteous, and his ears are open unto their cry.

16 The face of the Lord is against them that do evil, to cut off the remembrance of them from the earth.

17 The righteous cry, and the Lord heareth, and delivereth them out of all their troubles.

18 The Lord is nigh unto them that are of a broken heart; and saveth such as be of a contrite spirit.

19 Many are the afflictions of the righteous: but the Lord delivereth him out of them all.

20 He keepeth all his bones: not one of them is broken.

21 Evil shall slay the wicked: and they that hate the righteous shall be desolate.

22 The Lord redeemeth the soul of his servants: and none of them that trust in him shall be desolate.

I realized that I needed to start making a Conscious choice, every day, to give Thanks…to put my focus on God, and not on how big the storm was. God Knows what my son needs, even if Dak can’t tell me what is wrong. God goes with Dak to school, even if I Can’t. I started turning it all over, one step at a time, releasing control BACK to God. I did not realize I had been trying to handle it all on my own. Autism is TOO big for me. I Can’t do it. I don’t understand it. I started making the CHOICE to let go of each worry….My son’s fear of school…My Youngest Daughter’s grief over losing her closest friend to Cancer the end of August….Financial stresses…..As each doubt or worry or fear crept in, I fought it. Verses I have known all my life came back to my mind….

Matthew 6:25-34

 “Therefore I tell you, do not worry about your life, what you will eat or drink; or about your body, what you will wear.

Is not life more than food, and the body more than clothes? 

Look at the birds of the air; they do not sow or reap or store away in barns, and yet your heavenly Father feeds them. Are you not much more valuable than they? 

Can any one of you by worrying add a single hour to your life?

“And why do you worry about clothes? See how the flowers of the field grow. They do not labor or spin. 

 Yet I tell you that not even Solomon in all his splendor was dressed like one of these. 

If that is how God clothes the grass of the field, which is here today and tomorrow is thrown into the fire, will he not much more clothe you—you of little faith? 

So do not worry, saying, ‘What shall we eat?’ or ‘What shall we drink?’ or ‘What shall we wear?’ 

For the pagans run after all these things, and your heavenly Father knows that you need them. 

But seek first his kingdom and his righteousness, and all these things will be given to you as well. 

 Therefore do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own.

All the worrying I do was dragging me down. God has NEVER let me down. He has ALWAYS kept his word, so WHY was I wearing myself out stressing about every little bump in the road. Like Peter when He stepped out of the boat, I had taken my eyes off Jesus and put my focus on the water, and was sinking. (Matthew 14:22-33 ). I began to pray for help re-directing my focus OFF of how hard things are and back onto the one who gave His life for me. As I cried night after sleepless night, HE gave me a song…one I have known since childhood, but had forgotten….

You said you’d come and share all my sorrows
You said you’d be there for all my tomorrows
I came so close to sending you away,
But just like you promised, you came there to stay
I just had to pray

And Jesus said 
“Come to the water, stand by my side
I know you are thirsty, you won’t be denied
I felt every tear drop, when in darkness you
cried, and I strove to remind you,
That for those tears I died”

We have been studying Saul and David in Sunday school, and This week we were looking at 1 Samuel 13 and Israel’s fear of the Philistine Army. The root of Israel’s fear was that they forgot their Identity in God ( they are God’s Chosen People) and they lost their Hope in God. They forgot about all the times before when God had rescued them from overwhelming Odds, because God IS Bigger. This Hit me like a ton of bricks. How often have I forgotten all the times God has Provided, heard my cry, answered my prayers, come to my rescue when all seemed hopeless. I realized I was letting Fear into my day to day, and when Fear takes over, darkness sets in. I was reminded that Perfect Love Casts out Fear. (1 John 4:18) God has not given me a spirit of fear, but of Power, Love and a sound Mind. (2 Timothy 1:7). I continued to look deeper into this, seeking God’s help to overcome my struggle with worry, fear and anxiety and He reminded me of my Identity in HIM. He reminded me I am Bought with a Price, and when He looks at my life he does not see all the bad I have done, He sees what Jesus did for me when He died on the cross.

I cried again, asking the question once again that I have asked SO many times in the past 10 years since we heard the words “Your son has Autism”…I asked “WHY?” The answer I got was the same one I got all the times before…..

2 Corinthians 12:7-10

…Therefore, in order to keep me from becoming conceited, I was given a thorn in my flesh, a messenger of Satan, to torment me. 

Three times I pleaded with the Lord to take it away from me. 

 But he said to me, “My grace is sufficient for you, for my power is made perfect in weakness.” 

Therefore I will boast all the more gladly about my weaknesses, so that Christ’s power may rest on me.

 That is why, for Christ’s sake, I delight in weaknesses, in insults, in hardships, in persecutions, in difficulties. For when I am weak, then I am strong.

WOW…lets hear that again…“My grace is sufficient for you, for my power is made perfect in weakness.”  I need to Daily remember that..NO Matter what comes my way, HIS Grace IS enough. I am not perfect, and I struggle with this daily. I am learning to turn my focus OFF the storms in my life, and to look TO Jesus…My Hope, My Refuge, my deliverer, my Peace. I am thankful for the Blessings he gave me when He gave me my three children. I am thankful for the lessons that autism continues to teach me about love, about patience, about peace and hope and joy. Sure, the road is hard, and the tears often fall, sleep is often …well non existent, but HIS GRACE IS ENOUGH!

Of Knights and Dragons

September is Childhood Cancer Awareness Month.

here are a few facts:
it is not rare – 1 in 330 children develop cancer before the age of 19
• 1 in 5 children diagnosed with cancer dies as a result of the disease
• Childhood Cancer is the #1 disease killer of children – more than asthma, cystic fibrosis, diabetes, & pediatric AIDS combined

You may think “what does this have to do with Autism?” and I would have to say “very little” but, I am writing this post about a Precious little boy who took my world and turned it upside down, who stole my heart, and who was a HUGE part of my children’s lives….

“How lucky I am to have known someone who was so hard to say goodbye to” ~Unknown~

Some friendships leave such a HUGE Print on Our Hearts…

The Photo above is of my youngest Daughter and her Cherished Friend Barrett, who she affectionately claimed as her little brother 5 years ago. This Precious child stole my heart instantly when they moved in across the street from us. For 5 years I watched as a friendship blossomed and grew. I Took TONS of Photos through the years. Little did I know JUST how precious those Photos would become to my daughter, and to me.

In 2010 Barrett was Diagnosed with Cancer. For two years He fought, Bravely, never once complaining. He was always more concerned with how those around Him were doing.  This sweet boy Lived Life to the fullest, Jumping in Leaves, Riding His Bike, Laughing, Playing as Hard as He could. In November of 2011 the news came that the tumor had returned and that it was most likely terminal this time.  I remember sitting my daughter down and talking with her then about death, and trying to prepare her for the day when she may have to say goodbye. It was one of the hardest conversations I have EVER had to have.  We Prayed hard, and even though by this point, we had moved to a new house, we made sure to make the moments count. We continued making memories, and learned to cherish EVERY Moment.  August 2012, My heart shattered. The news came that there was nothing more the Doctors could do. As I struggled to find the words to have another conversation with my children, we made arrangements for a play date, and my princess spent an afternoon with Barrett. It was to be their Last day together, and It was a Good day. A Week Later, On August 26,2012 Barrett went to Heaven.  My Heart was shattered, and I can’t even BEGIN to imagine the pain His Mother is going through. My thoughts though, IMMEDIATELY went to the kids. Including my own three, there is a group of kids that Love Barrett deeply….

Let’s Call them the Knights of Honeysuckle.

As The Leaves begin to fall, My Mind drifts back to the days on Honeysuckle, my yard full of kids and laughter. Whether they were jumping in Piles of Leaves, or playing Kickball, Fighting Dragons, or playing Tag, This group of kids always found a way to include everyone, regardless of Age, disability, color. The Memories Made in the time we lived there will be forever cherished, imprinted on my heart.

There is a Very Precious thing that happens when Children’s Laughter, and Imagination rules…

When a clump of trees becomes a Fort….

When Dragons and Robots appear and the Castle must be defended…

When the Older kids drop everything to Teach a Younger child how to Ride a scooter….

I am SO Very Blessed and Thankful for each and every Precious Moment we had with Barrett

For the Memories Made

For the Once in a Lifetime Friendship my Youngest child and Barrett have ( yes I say HAVE, because she will NEVER forget Him)

For the Smiles and Laughter….

For The Hugs….

For the Beauty of Childhood…

For the Delight in the simple things Like Digging a Hole….

I Could Keep Going, But My Point here is…

Cherish EVERY Moment with those You Love.

Take time to enjoy the simple things….

Hug Your Children Often…

Make time to Play WITH them….

and Let them Be Little!

Priceless

This weekend was Memorial Day Weekend, and for me it was an emotional one. Memories of childhood raced back to my mind, and I longed for simpler days…for Community Parades, and BBQ’s, Memorial wreath Ceremonies, small town USA celebrating our Nation’s True heros in a BIG way. There are other Factors in place that added to my rollercoaster of emotions this weekend…..Autism, Chaos of the school year winding to a close, kids routines all out of whack, and much more. Lets Face it, I was a MESS this weekend, and the tears flowed freely.

Yesterday, in the middle of all the tears, the ups and downs, the storms raging around me, God gave me a Beautiful Priceless Gift…..

My Youngest wanted to go outside and play in the sprinkler, so outside we went. She was having fun, but was sad that her older two siblings did not want to play with her. This was par for the course, as they are both on the spectrum and are usually content in their own worlds. The next thing I knew, my son came flying out the door in his swim suit, and for the next two hours I watched Him interact with his little sister. I got lost in teh harmony of thier laughter, and relished in the beauty of my youngest two children enjoying the day…together, without fighting, or whining, and of course, I took a Bazillion Photos….cause, well Like my husband likes to say, my camera is my 3rd eye!

When I pulled the Pictures off my Camera late last night, exhausted and ready to go to bed, I found one that captured the priceless beauty of the day perfectly….

There is SO Much I love about this Photo…
the fact that My Princess got QUALITY time with her Big Brother…
who is usually in his own world…
It’s Moments like this that melt my heart,
 that make all my tears worthwhile,
 that remind me that no matter how hard it gets,
 it IS worth every struggle,
 every fight,
every tear,
every sleepless night….
The Giggles and HOURS of Laughter that led to this Photo…
It reminded me that while we may be poor by the worlds standards,
We are rich and blessed beyond measure with priceless treasures that no money can buy.
 I am SO thankful that even in the midst of life’s darkest storms,
God blesses me with moments like this…
a reminder of what is truly important.

Autism Awareness~30 Days of Snapshots 2012: Day 14

Author Note: This should have been published yesterday, but I had to finish the Photos before I could post it

My Facebook Status after Baseball Today: “Home from Dak’s Miracle League Baseball Game. LOVE Saturdays for SO many reasons! I Get to watch My boy play Baseball, I get to spend time with other Parents who Understand the roller Coaster that is raising a Special Needs Child, AND I get to watch my Girls interact with thier Friends who understand thier Roles as Siblings….Miracle League is Truly one of the Biggest Blessings in my Life.”

Miracle League Baseball because “Every Child Deserves A Chance to Play Baseball.”

As a Mom of Special needs children, This truly is one of the Biggest Blessings in My Life.

It has become more than just watching my son get a chance to play baseball…

 it has become something more….

a chance for me to talk to other moms who know what it is like to love a child with special needs….

 it has become a way for my husband to connect with his son…

 to watch them do something we thought they may never get to do together….

It has become a way for my “NT” child to connect with other “NT” siblings who understand what she faces with special needs siblings….

It has become more than just a game, it’s a community, a family, and I am blessed to be a part of it….

♥I will leave you with this Photo…

one of my favorite moments…

Dakota steals home so He can go sit down in the dug out and get a drink

( He used to just walk off the feild, so This is progress  :P) ♥

♥ and In Closing…The Miracle League Song…

I simply do not have the words to Thank all of the people who work so hard every year to make this happen…

The Buddies who volunteer to help the kids who need help…

the coaches…

The Businesses and churches who sponsor teams….

The amazing woman who handles all the coordinating, organizing…

Thank you each and every one for giving parents like me one of the greatest Gifts in the world…

Autism Awareness~30 Days of Snapshots 2012: Day 10

Ok, so My goal to post everyday isn’t going so well this year. The challenges of having two teenagers on the autism spectrum in the house are, well…overwhelming at times. We have seen regression in many areas…behavior issues we have not seen in several years have returned. To say I am exhausted would be a VAST understatement!

Today as I logged in to Facebook, I saw a Blog post that struck a chord with me, Hate the Autism/ Hate the Child?  It got me thinking, and I mean REALLY thinking. I have said in the past that my kids don’t need “fixing”, that they are not Broke, just wired different, and I stand by that statement. Does that mean though, that I LIKE every behavior? No…There ARE things they do that I would change. My Heart aches when my son can’t tell me what is bothering Him, and yet I KNOW something is wrong. And that gut wrenching fear that hits when He decides to take off from school, church, or home…yeah I could live without that. It is no different than when I tell my youngest to stop whining, or some other behavior she should not be doing. I Guess what I am saying is this…I Love ALL three of my kids, in SPITE of Autism, in SPITE of those behaviors that I don’t like. God made them EACH Special, and regardless of their challenges, they are ALL Blessings. There are days when my Patience is SHOT, when I want to scream ” I Can’t TAKE IT ANYMORE!”, when I just want to go off and hide somewhere.

Yes, There are GOOD things loving a child with Autism has taught me…like how to appreciate the simple things, to take life at a slower pace, the value of a smile, a hug….One of my favcorite quotes is…

“You can complain because roses have thorns,

or you can rejoice because thorns have roses”

I have learned that wether it is with my kids, in my marraige, or in life in general If all I focus on is the Negative, I am going to be miserable, but I Can’t ignore the Bad all together either. Sometimes to see the Rainbow, one has to go through the storm first.  This past weekend, my Husband and I celebrated our 16th Wedding Anniversary. The road has not been easy, we have had our share of challenges, fights, and struggles, but we have learned a lot along the way….

Lessons learned in the 16 years I have been married to the AMAZING Man God Brought into my life….

 1.) NEVER fight in front of the kids

 2.) I MUST respect my Husband and Honor HIS Leadership. God placed Him as the Head of Our Household.

 3.) HONEST Open communication is KEY.

 4.) Resorting to name calling and fighting dirty won’t accomplish anything.

 5.) Don’t go to bed angry.

 6.) Even after 16 years, It is still fun to flirt with my husband.

 7.) No Matter how hard things seem, He is always there for me, I can depend on Him.

 8.) Without Trust, things unravel quickly.

 9.) I get more help with the kids if when He gets off work I don’t ambush Him as soon as He walks in the door. Give Him time to decompress first.

 10.) He needs “Alone time” as much as I do.

 11.) Submitting to His leadership does not make me weak, It is what God called me to do, and it actually makes me stronger. (Ephesians 5:22-33)

 12.) He can’t read my mind…If something is bothering me I need to TELL him, without backing him into a corner.

 13.) He worries about the kids as much as I do, He just expresses it differently

 14.) There is nothing wrong with being married for 16 years and still acting like newlyweds!!

15.) Even though I am a stay at home mom, that doesn’t mean I should stop dressing up for my husband.

 16.) I Love Him more today than I did when we met. The road has not been easy, but Walking it with Him by my side makes it all worthwhile.

 Our anniversary is April 6th….

16 years ago a Marine from Alabama and a Marine from Upstate NY said “I do” in North Carolina…

I Love you “Bama”,

For better or worse, for richer or poorer, in sickness and in health, till death do us part

 I am so Thankful God Brought you into my world in the middle of the desert in California!

Strong enough

I know I said at the end of the post I wrote on Tuesday about The day that wouldn’t end  that I would write about an amazing moment, and I will…but two of My fellow blogging Mommas have posted things this week, wich I read this morning that hit home so hard for me I am sitting here in tears, that I feel I NEED to say something more.

Rhema’s Hope  wrote a Beautiful post about love, about finding the grace within oneself to accept help when we need it. It’s about mercy and redemption. I encourage you to Go read Clean. So much of what she wrote screamed at me. Here is the comment I left her….”So sorry that you are fighting the poop art battle…but at the same time OH so VERY Thankful you wrote this post!!!! Sitting here with tears streaming down my face…thankful to know I am not alone in the land of poop art, wich I thought I had left behind, but my dear boy has regressed back to in recent weeks. Thankful I am not alone in feeling like this is “my burden to bear”, struggling to  not let anyone see how hard I fight, to hold back the tears, the worst moments, the pain, and the embarrasement. Thank you for your honesty….that you for the amazing life lesson and reminder ( the very same one I Got last summer in a poop art chaos, and had forgotten). Sending Much love and Huge Virtual Hugs!” I love how in the midst of the storms life brings us, God gives us glimpses of hope, glimpses of His perfect love. As my friend so eloquently stated “How my Lord is so very merciful. He knows me, that I am filthy, but does He turn His back? Leave me alone? Give me the punishment I deserve? No, He comes near to us and faithfully makes us ”good as new” (as Hope would say).

Repeatedly I fall, my heart and soul smeared to the point of no return. Yet morning after morning, there are new mercies to “blot out my transgressions”, still more grace to cover my ”accidents.” No matter how many times my girl makes a mess, I love her fiercely and faithfully. I’ll scrub her and the walls over and over, and still love her more. The love of God is greater far.

I am indebted and I don’t like that feeling. But I need help — can’t clean me up on my own. I humbly accept the salvation He gives, let His great compassion soak up the stains, let His unfailing love wash over…

Ah, this is what it is to be made clean.” This is the SAME Viusal God gave me last summer as I spent HOURS scrubbing the bathroom walls, my son’s room, the floors…the entire time in tears. We were in the process of moving, and I was MORTIFIED to have people see just how bad our house looked as they came in to help us move.

One of the things that literally JUMPED off the page at me in her  post was when she said ”  “I thought, My mess, my problem. Leave me alone to suffer. If you help me, I’ll be indebted and I don’t like that feeling.” That statement struck a DEEP chord with me, as I often feel the same way. I hate asking for, or admitting that I need help. I feel like a burden, I struggle with letting anyone get to close in fear of embarassment, in fear that they will judge me. Autism and all that goes with it is , at times, TOO big…TOO hard and it is SO easy to just isolate myself, to never share the pain, the heartache, the daily struggle. I have hit the point where I am tired…tired of fighting, tired of crying, tired of feeling helpless and alone. I confessed some of how tired I am to a friend at church last night, and as I did, I fought back the tears that seem to fall way to easily these days. Her reaction? she simply reached out, wrapped her arms around me and hugged me tightly. It was a hug that spoke Volumes, it comforted my aching heart. It said ” you are not alone.”It was exactly what I needed.

That word, indebted….it jumped at me even more as I read the post my friend Jess from Diary of a Mom wrote in response over at Oxygen Mask Project. In her post entitled Debt, she wrote “With all the respect in the world for my dear friend, I just don’t buy it. I don’t think that debt has any place in her story – or mine or yours. I don’t believe that love – either the great love of God or the humblest love of a friend – keeps account of what it gives or what it receives.

There can be no debt in love.

Unlike any other resource we have, love’s supply can never be depleted – neither God’s nor man’s. Because the miraculous thing about love is that it replenishes itself through the very act of being given away. That’s a pretty amazing thing. What else works like that? As we give it away, it grows.”

These two wonderful Mommas reminded me that it really is ok to admit that I can’t fight this battle alone, that this fight is LONG, and Hard, but NOT one I need to walk all by myself. It really is ok to admit “I need help”. I need to get better at letting others help me, at not feeling like a burden. It is SO easy for me to reach out and help another, but to admit that I need help…is one of the hardest things for me to do.

I am so very thankful for this community of “Momma bloggers” whom I have never met, yet whom walk the same journey. Sure our children are all different, and yet the tears, the heartache, the struggles we face, are all very much the same, and I consider it a blessing that I walk it amoung friends.

The day that wouldn’t end

I contemplated all weekend wether to write this post or not….to open up and tell about one of the worst days we have had in a LONG time. In the end I have decided that this is a tale I NEED to share, not just because I need to talk about it rather than bury it deep and lock it away, but also because there may be another mom ( or Dad) out there in Autism-land who may be fighting the same battle, facing the same fears, crying the same tears, and if what I learned from this one day that seemed to never end can help her (or Him), then it is worth it.

Friday began like every other day, I got up and started getting the kids out the door for school. There is a system in place that just…works. The oldest leaves first, then Dak-man, then the youngest and I walk to her school. All SEEMED to be going according to routine, but then, as Dak and I were waiting on his bus, it all started to unravel. He began crying out that his stomach hurt, and just flat out screaming. This is not the first time this has happened, so I sent him back in the house, and told the bus driver Dak would be staying home.

Before I go any farther, let me back up a minute and state that Dak has been screaming out randomly about his tummy hurting off and on for about a month. We went to the Doctor, ran the gammit of tests….everything checked out. His Doctor suggested that since he is almost 13 it MAY be growing pains, and puberty sending his body all outta whack, so at her suggestion we increased his pottassium by adding a bananna a day, and Gatorade to his diet. This SEEMS to be making a difference. Friday, however, there was another factor at play…a major weather front system was moving into our area, and when the barometric pressure changes drastically, it wreaks all kinds of havoc on Dak.

Ok…back to the events of the day….

I told Dak that we still had to walk his sister to school and that He needed to leave his school clothes/shoes on till we got home, but He had a one track mind. He was in pain and chnaged into shorts and a t-shirt, took his shoes off, and climbed into bed. After gently coaxing Him back into his shoes, the three of us headed out the door and all SEEMED to be ok. We got about half way to her school and Dak fell apart. It was starting to rain, so both kids had their umbrellas…Shawna had her tinkerbelle one, and Dak, his Iron man one. Dak started randomly swinging his umbrella while also screaming , and wouldn’t you know it…the umbrella hit me in the eye. I managed to calm him down…briefly. Then He darted across the street into a neighbor’s yard, screaming the whole time. what scared me the most in all this is that he was “non-responsive”. He had slipped into His “own little world” and I could not reach Him. I was terrified he was going to get hurt. I left a very upset Shawna standing on the sidewalk as I chased after her brother, calmed him down, and coaxed him back to where she was standing, and what hit me at that moment, as I looked at her precious face, was that this little princess of mine bears a tremendous load. She is my youngest, the only one of my children NOT on the spectrum. I saw in her eyes so much concern for her brother, sadness for me, and determination to help me help him get through this, so much love, pain, so many emotions flashed across my little girl’s face.

We started walking towards school again, and this time, made it about 3/4 of the way there. Dak slipped away again, this time just collapsing onto the grown, kicking and thrashing around. I called my husband, knowing FULL well he was at work and there was nothing he could do, but at the same time somehow hoping my hero would come rescue me. We decided that Shawna could handle the last bit of the walk to school on her own, and Dak and I would head for home. I cried the whole way home. I got angry at the situation and texted mean things to my husband, whom I had hoped would come rescue me ( knowing full well he couldn’t). As I worked to stay calm, to get Dak home, I did something I should have done from the start..I cried out “Lord, Please help me! Help Dak calm down enough that we can get home safely” and I got Dak to focus on me…told him Mommy was hurt and he needed to get mommy home safely. He took charge, and it worked.

Once we got home, and I had Dak resting in his room, I called my husband to apoligize for my childish behavior, and I cried…and cried. We worked through it, and got over the mountain. The rest of the day continued to be one outburst after another from Dak. each time, it was like he had slipped into some horrible place that I could not rescue Him from. I was scared, I felt SO alone and helpless. I ended up calling my husband again asking to be rescued, again knowing there was NO way he was going to be able to leave work. The only thing left for me to do was to hit my knees and pray. I spent the whole day in tears. I got reminded of one of my life verses….

Isaiah 40:30-31 (NIV) 

 30 Even youths grow tired and weary,    

and young men stumble and fall;

31 but those who hope in the LORD    

will renew their strength. They will soar on wings like eagles;    

 they will run and not grow weary,    

 they will walk and not be faint.

When my husband got home that night, I collapsed. I had a Black eye, thanks to the umbrella, and felt from head to toe like I had just been in a fight, emotionally drained,  I let Him take over and I went and hid for an hour. I learned a few things from this day that seemed to never end….I learned that I CAN get through days like that without my husband rescuing me ( this is a GOOD thing, because being a Military wife, if deployment happens, I CAN’T even CALL him to rescue me!). I learned that even in the midst of the worst storms, I am NOT alone. Life was never meant to be easy, but if I remember where my hope rests, if I REST in the promises Jesus gave me, I WILL be ok. When I depend on MY strength, I fall apart on days like this, because I Just am not strong enough. but when I rely on HIS Strength, I CAN.

Saturday ended up being an AMAZING day….but that is another post, which I will share soon. Right now though, I need to go refill my coffee cup!