Autism Awareness~30 Days of Snapshots 2012: Day 14

Author Note: This should have been published yesterday, but I had to finish the Photos before I could post it

My Facebook Status after Baseball Today: “Home from Dak’s Miracle League Baseball Game. LOVE Saturdays for SO many reasons! I Get to watch My boy play Baseball, I get to spend time with other Parents who Understand the roller Coaster that is raising a Special Needs Child, AND I get to watch my Girls interact with thier Friends who understand thier Roles as Siblings….Miracle League is Truly one of the Biggest Blessings in my Life.”

Miracle League Baseball because “Every Child Deserves A Chance to Play Baseball.”

As a Mom of Special needs children, This truly is one of the Biggest Blessings in My Life.

It has become more than just watching my son get a chance to play baseball…

 it has become something more….

a chance for me to talk to other moms who know what it is like to love a child with special needs….

 it has become a way for my husband to connect with his son…

 to watch them do something we thought they may never get to do together….

It has become a way for my “NT” child to connect with other “NT” siblings who understand what she faces with special needs siblings….

It has become more than just a game, it’s a community, a family, and I am blessed to be a part of it….

♥I will leave you with this Photo…

one of my favorite moments…

Dakota steals home so He can go sit down in the dug out and get a drink

( He used to just walk off the feild, so This is progress  :P) ♥

♥ and In Closing…The Miracle League Song…

I simply do not have the words to Thank all of the people who work so hard every year to make this happen…

The Buddies who volunteer to help the kids who need help…

the coaches…

The Businesses and churches who sponsor teams….

The amazing woman who handles all the coordinating, organizing…

Thank you each and every one for giving parents like me one of the greatest Gifts in the world…

Autism Awareness~30 Days of snapshots: Day 27

We are almost through the month,

Autism Awareness Month, and the Month of the Military Child

For those of us Military Families, Raising a Military child with Autism,

when the month of April end, the daily battles, the awareness, continues,

we live it 24 hours a day, 7 days a week, 365 days a year….

We juggle Training, Deployments, and the Military way of “semper Gumby” (Always Flexible),

Play the game of “Hurry up and wait” while also having to maintain rigid schedules for our children ,

We tackle meltdowns, celebrate the smallest of accomplishments,

and often live miles , even states away from our support structures,

and yet, we continue to press on

supporting and loving our Military,

advocating for our children,

looking for the simplest blessings….

Today’s Montage…

To the simple things…

A Rare moment…A Quick Hug

“I Love you”

To Board Games…

To a Treasured Gift

To Hayrides…

To Watermelon….

To the love of a favorite book…

We Cherish the small moments…

The Glimpses into His world…

when Exhaustion strikes

I realize I have not posted in a few days, and that puts me behind on my 30 days snapshot series, but I am feeling rather overwhelmed lately. We have gotten through the first of two weeks of Daddy being gone, and Dak is starting to come “unglued”. We have done ballgames, and church events, and managed to make it to everything on our schedule, but Dak said last night he is DONE.

We have gotten through field trips for school, and a LONG night of severe weather threats, church events, Easter, My Youngest’s Birthday, Ball games for all three kids, softball practices for both girls. Each night it has been tears and “Miss Daddy” wails from both Dak and my youngest. Weds. Night, April 27,2011 was the worst, Our entire state was under seige by Mother Nature. Dak as I mentioned in an earlier post, does NOT do severe weather. Thankfully, the area where we live only saw rain, but the Northern half of our state has been just devastated. It is truly heartbreaking. As the death toll climbs over 200, I find myself counting my blessings, yet utterly and completely exhausted. Last night my oldest had a softball game, and while It broke my heart to do so, we dropped her off at the ballfield and came home. Dak simply could not handle sitting and watching the game. I cried all the way home.  We ate dinner, and headed back to the ballfield with 30 minutes left in her game. My youngest played with the other younger siblings at the ballfield, but Dak just wanted to run….He ignored the limits I set for Him, refused to listen. When I attempted to enforce a time out, He slapped me across the face and took off running for the parking lot.

I have been blessed with friends helping me throughout the week, getting the girls to their events, but last night, I had no help, and I felt so alone.  It broke my heart that my oldest had nobody cheering for HER, sure there were people there watching the game, but nobody there just for HER. It Hurt that Dak just wants Daddy home, and we still have another week to go. I hurt for all the people in the northern part of my state who have lost everything in weds. night’s Tornado outbreak.

Tonight, my oldest has her first dance. I am excited for her, and I hope that those who have promised to help me tonight will help make sure her night is a night fit for a princess, and that somehow every moment possible is captured on camera so my husband can see it all.

There was a time when I would apoligize for not keeping up with my 30 days of snapshots posts, but I am not going to this time, just simply state that I just can’t do it. I am overwhelmed, I am exhausted, I miss my Husband. He is my rock, my back-up, and I am doing the best that I can, but I just can’t do it all.

I am thankful that we are half way through, and as we mark another day off on the Calendar tonight, I hope that Dak sleeps, that Sara has an enchanted night, and that Shawna enjoys time with a favorite cousin, and that all three of my children realize just how precious they are and that mommy is exhausted because they come first, and because I love them more than words can say. I Know that God will never give me more than I can Handle, and That HE is in control, and I am leaning on Him for strength, and Patience. I also know that sometimes I need to just fall apart and Cry, and that is where I am at.  I know I am blessed, I know God is with me, I know all of this, but when Exhaustion strikes, the tears fall, and I need to vent.

Autism Awareness~30 Days of snapshots: Day 8

to watch a Miracle League Game is TRULY a Blessing…

a lesson in Love….




for the love of the game in it’s PUREST Form….

*I get to play BASEBALL!*


*Time with Daddy*

*Forming Friendships*

*Dreams do come true!*

*Baseball friendships*

*Big sister and Baseball Buddy*


To all the people who make this possible…


Siblings and Autism:’unsung heros of autism.’

This is something that eats at me almost daily. a subject near and dear to my heart. I have THREE kids. one happens to have autism. It breaks my heart when my husband and i have to take turns at the girls ballgames because one of us has to stay home with their brother…..or when we have to leave a friend’s party early because he is falling apart on sensory overload.

I worry that they will grow up and resent Him. I fight to make sure they get quality time with me and Daddy. I do everything I can to make sure they get to go to youth group and AWANA, to sleep-overs at friends houses, to try and make sure they have lives outside of Autism.

I fear that I am not doing enough, and I pray daily that God will Guide my steps as I try to raise the three precious gifts He gave me.

Please Click on this link and watch the Video ( don’t know any other way to do this) Siblings and Autism:’unsung heros of autism.’ and Thank you, Jim Watkins PIX for helping shine the light on this!

*Follow up to this:(April 10,2011) Jim Watkins posted a Follow up on His Blog

This is My Autism (via Light the White House Blue for Autism)

My friend Jess over at Diary of a mom wrote the following Letter to President Obama. I couldn’t have said it better myself. For my son, for her Daughter, for all the Families living with Autism, I encourage you to read this letter, and to Light it up Blue on April 2nd

This is My Autism Dear Mr. President, I need your help. Last year, on April 2, 2010, you issued a statement expressing your support of World Autism Awareness Day. I appreciate the fact that you did that. Your support is vital to our community. But I’ll be honest with you, Mr. President. I didn’t even see your statement until I really started digging around on the Internet last night. With all due respect, Sir, if I didn’t see it, I’m guessing almost no one saw it. … Read More

via Light the White House Blue for Autism

ACT today (via a diary of a mom)

One out of every 88 military children has a diagnosis on the autism spectrum. This is a message that needs to get heard! Thank you Jess for this Blog post.

ACT today Photo from Rome News Tribune ** I’ve been holding onto the following post for far too long. I’ve stared at it on the screen, been ready to hit publish, then stopped short time and again. I’m just not convinced that it makes the point strongly enough. I don’t think that the words adequately convey the intensity, the exigency of the situation. I’m afraid that the post loses something because it focuses on such a miniscule slice of the overwhelming … Read More

via a diary of a mom

Epilepsy and Autism: Does the study of one help us understand the other? (via Autism Speaks Official Blog)

I am actually glad to see this article….strange as that may sound. My son has had several EEG’s since His Diagnosis with Autism 7 years ago…although Due to whatever reasons…I have been unable to get a Referral for another one for 3 years…forget the Family History of Epilepsy…or that He is one of THREE Cousins on my side of the family who is on the spectrum….or that His EEG’s in the past have all come back abnormal….some even showing seizure activity…so why is it so hard for me to find a Dr who will LISTEN to me as the parent….who will HELP me make sure my child is healthy….Autism does NOT mean He is broke…just wired differently, I have said that for years now…BUT That being said….His seizures are just ONE of the aspects that NEED attention…He cant enjoy summertime…because the extreme southern heat often bring on a seizure….

Staff Blogger, Leanne Chukoskie, Ph.D., Asst. Dir. Science Communication and Special Projects Epilepsy is a common comorbidity in autism, occurring in as many as 30% of all cases.  In overnight or 24 hour EEG studies, atypical brain activity known as spikes or epileptiform activity—that looks somewhat like brain activity during seizure but does not occur with a seizure—has been measured in as many as 60% of autism cases.  What can this atypical b … Read More

via Autism Speaks Official Blog