Peace be still…

The Past few months I have been doing quite a bit of thinking, reflecting, re-directing. My son turned 13 in September, in the middle of a stretch of REALLY rocky road on this journey with Autism. School had started in August, and one month in, He still had not settled back into routine, and it was clear from almost day one, something was wrong. He protested that school was bad, and cried daily, BEGGING to stay home. He started running from class, his behavior went downhill FAST, and He started trying to hurt himself at school, all so He could come home. He was not sleeping at night…which of course meant, I was not sleeping at night.

All the no sleep gave me plenty of time to think, to cry, and to pray. I looked back at when the journey began. I thought about how long I had been fighting…with Doctors, insurance companies, schools. I realized I was Exhausted, I longed for a break from the “front lines”.  I lost sight of just how far we have come, the progress made. My focus was off. I spent more time focusing on how tired I was, on the storms raging around me than on my source of Hope. Exhaustion took over, and I started to get angry. I felt lost and alone.  I felt helpless. The worse things seemed to get for my son at school, the more helpless I felt. I was sinking, and I knew it. What I didn’t know, was how to turn my focus back to where it needed to be.

One night I was talking to a friend about it all, venting and crying, and she said to me “Stop. It’s time for you to remember you are not alone. It’s time for you to stop focusing on how hard it is, and focus on what you need to do. Your kids need you to not fall apart.” My mom listened to me day in and day out, crying on the phone sometimes for hours, she never stopped praying, never stopped encouraging.

One Sunday in Sunday school, my Sunday School teacher said ” I don’t know why but before we start I feel I need to read a passage of scripture that is totally unrelated to what we are studying.” He read Habakkuk 3:17-18 which reads as follows:

Though the fig tree does not bud
    and there are no grapes on the vines,
though the olive crop fails
    and the fields produce no food,
though there are no sheep in the pen
    and no cattle in the stalls,
 yet I will rejoice in the Lord,
    I will be joyful in God my Savior.

It was a wake up call for me, a Reminder that I need to give thanks to God NO MATTER WHAT.  That even in the darkest hours, I should be praising God, in the Midst of the storm. My Focus should be on HIM and not on the waves crashing around me. I was reminded of a Psalm that My Dad used to read to us all the time when I was Growing Up:

Psalms 34

I will bless the Lord at all times: his praise shall continually be in my mouth.

My soul shall make her boast in the Lord: the humble shall hear thereof, and be glad.

O magnify the Lord with me, and let us exalt his name together.

I sought the Lord, and he heard me, and delivered me from all my fears.

They looked unto him, and were lightened: and their faces were not ashamed.

This poor man cried, and the Lord heard him, and saved him out of all his troubles.

The angel of the Lord encampeth round about them that fear him, and delivereth them.

O taste and see that the Lord is good: blessed is the man that trusteth in him.

O fear the Lord, ye his saints: for there is no want to them that fear him.

10 The young lions do lack, and suffer hunger: but they that seek the Lord shall not want any good thing.

11 Come, ye children, hearken unto me: I will teach you the fear of the Lord.

12 What man is he that desireth life, and loveth many days, that he may see good?

13 Keep thy tongue from evil, and thy lips from speaking guile.

14 Depart from evil, and do good; seek peace, and pursue it.

15 The eyes of the Lord are upon the righteous, and his ears are open unto their cry.

16 The face of the Lord is against them that do evil, to cut off the remembrance of them from the earth.

17 The righteous cry, and the Lord heareth, and delivereth them out of all their troubles.

18 The Lord is nigh unto them that are of a broken heart; and saveth such as be of a contrite spirit.

19 Many are the afflictions of the righteous: but the Lord delivereth him out of them all.

20 He keepeth all his bones: not one of them is broken.

21 Evil shall slay the wicked: and they that hate the righteous shall be desolate.

22 The Lord redeemeth the soul of his servants: and none of them that trust in him shall be desolate.

I realized that I needed to start making a Conscious choice, every day, to give Thanks…to put my focus on God, and not on how big the storm was. God Knows what my son needs, even if Dak can’t tell me what is wrong. God goes with Dak to school, even if I Can’t. I started turning it all over, one step at a time, releasing control BACK to God. I did not realize I had been trying to handle it all on my own. Autism is TOO big for me. I Can’t do it. I don’t understand it. I started making the CHOICE to let go of each worry….My son’s fear of school…My Youngest Daughter’s grief over losing her closest friend to Cancer the end of August….Financial stresses…..As each doubt or worry or fear crept in, I fought it. Verses I have known all my life came back to my mind….

Matthew 6:25-34

 “Therefore I tell you, do not worry about your life, what you will eat or drink; or about your body, what you will wear.

Is not life more than food, and the body more than clothes? 

Look at the birds of the air; they do not sow or reap or store away in barns, and yet your heavenly Father feeds them. Are you not much more valuable than they? 

Can any one of you by worrying add a single hour to your life?

“And why do you worry about clothes? See how the flowers of the field grow. They do not labor or spin. 

 Yet I tell you that not even Solomon in all his splendor was dressed like one of these. 

If that is how God clothes the grass of the field, which is here today and tomorrow is thrown into the fire, will he not much more clothe you—you of little faith? 

So do not worry, saying, ‘What shall we eat?’ or ‘What shall we drink?’ or ‘What shall we wear?’ 

For the pagans run after all these things, and your heavenly Father knows that you need them. 

But seek first his kingdom and his righteousness, and all these things will be given to you as well. 

 Therefore do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own.

All the worrying I do was dragging me down. God has NEVER let me down. He has ALWAYS kept his word, so WHY was I wearing myself out stressing about every little bump in the road. Like Peter when He stepped out of the boat, I had taken my eyes off Jesus and put my focus on the water, and was sinking. (Matthew 14:22-33 ). I began to pray for help re-directing my focus OFF of how hard things are and back onto the one who gave His life for me. As I cried night after sleepless night, HE gave me a song…one I have known since childhood, but had forgotten….

You said you’d come and share all my sorrows
You said you’d be there for all my tomorrows
I came so close to sending you away,
But just like you promised, you came there to stay
I just had to pray

And Jesus said 
“Come to the water, stand by my side
I know you are thirsty, you won’t be denied
I felt every tear drop, when in darkness you
cried, and I strove to remind you,
That for those tears I died”

We have been studying Saul and David in Sunday school, and This week we were looking at 1 Samuel 13 and Israel’s fear of the Philistine Army. The root of Israel’s fear was that they forgot their Identity in God ( they are God’s Chosen People) and they lost their Hope in God. They forgot about all the times before when God had rescued them from overwhelming Odds, because God IS Bigger. This Hit me like a ton of bricks. How often have I forgotten all the times God has Provided, heard my cry, answered my prayers, come to my rescue when all seemed hopeless. I realized I was letting Fear into my day to day, and when Fear takes over, darkness sets in. I was reminded that Perfect Love Casts out Fear. (1 John 4:18) God has not given me a spirit of fear, but of Power, Love and a sound Mind. (2 Timothy 1:7). I continued to look deeper into this, seeking God’s help to overcome my struggle with worry, fear and anxiety and He reminded me of my Identity in HIM. He reminded me I am Bought with a Price, and when He looks at my life he does not see all the bad I have done, He sees what Jesus did for me when He died on the cross.

I cried again, asking the question once again that I have asked SO many times in the past 10 years since we heard the words “Your son has Autism”…I asked “WHY?” The answer I got was the same one I got all the times before…..

2 Corinthians 12:7-10

…Therefore, in order to keep me from becoming conceited, I was given a thorn in my flesh, a messenger of Satan, to torment me. 

Three times I pleaded with the Lord to take it away from me. 

 But he said to me, “My grace is sufficient for you, for my power is made perfect in weakness.” 

Therefore I will boast all the more gladly about my weaknesses, so that Christ’s power may rest on me.

 That is why, for Christ’s sake, I delight in weaknesses, in insults, in hardships, in persecutions, in difficulties. For when I am weak, then I am strong.

WOW…lets hear that again…“My grace is sufficient for you, for my power is made perfect in weakness.”  I need to Daily remember that..NO Matter what comes my way, HIS Grace IS enough. I am not perfect, and I struggle with this daily. I am learning to turn my focus OFF the storms in my life, and to look TO Jesus…My Hope, My Refuge, my deliverer, my Peace. I am thankful for the Blessings he gave me when He gave me my three children. I am thankful for the lessons that autism continues to teach me about love, about patience, about peace and hope and joy. Sure, the road is hard, and the tears often fall, sleep is often …well non existent, but HIS GRACE IS ENOUGH!

Of Knights and Dragons

This gallery contains 11 photos.

September is Childhood Cancer Awareness Month. here are a few facts: it is not rare – 1 in 330 children develop cancer before the age of 19 • 1 in 5 children diagnosed with cancer dies as a result of the disease • Childhood Cancer is the #1 disease killer of children – more than […]

The Rollercoaster

As another summer Vacation winds to an end for my kids, I find that it is very bittersweet for me. This summer has been; in some ways; a LONG exhausting, emotionally and Physically Draining one. In Other ways it has been wonderful, has flown by too fast, and I ache to slow down the steady march of time. As another school year approaches, I find myself looking back at how fast time has flown by. My oldest is headed into 10th grade, The Boy is headed into 7th Grade, and my baby….yes I know, your not a baby anymore….is headed into 5th Grade.

I know that I really have not written much since 2012 arrived. I have struggled with the words this year. I have wondered just how much do I write? I have contemplated the whole “if you have nothing good to say, don’t say anything at all” concept. The fact of the matter is, I have 2 teenagers on the autsim spectrum ( well the boy will be 13 next month). The challenges of all things teenagerish have been…. whats the word I am looking for here?…..exagerated? Amplified? Intensified? Complicated? ahh yes, Complicated…..complicated by the challenges of all things autism. the onslaught of puberty has sent my sweet boy into a tailspin of regression, and much like when he was a toddler, I have to watch his every move. The difference is, he is much bigger now…scooping Him up into my lap to calm down a meltdown is no longer an option, scooping him up and redirecting is no longer an option. In fact, He has made the (correct) observation that He is as tall as mommy is now…and has on more than one occasion, told me he is “an adult now”.

I wrote the above before school started. We are now into day 4 of Back to school and the anxiety is still running high. The change of routine has things all sorts of out of whack. I hope things start to settle down soon. I am EXHAUSTED!

The rollercoaster of a summer….the highs were….WOW! and the Lows…well OUCH!

We saw our Oldest go with the Youth Group on her first Mission trip….I was a WRECK, but all reports say she did fine! I gave the chaperoning adults a LONG list of what to watch for as to sensory overload, what to do to help her calm down, Challenges, ect. The reports I got when they returned were that she worked hard, maintained an excellent attitude, and had a great trip!

We saw an intensification of the Boy’s elopment issues…and had some VERY scary moments ( thankfully all ended well). He is now on the “kids to watch for” list at Toys R Us ( as in if he shows up unsupervised call mom and dad),  has a Medical Alert Bracelet, and per our request, a note has been made with 9-1-1 that if a call for our adress is recieved, be aware there are children with Autism in the home.

In the Midst of all the ups and downs with the older two and all the extra attention they required this summer, I started to worry that my youngest was not getting enough of my time…the biggest argument my girls had this summer was the oldest telling the youngest “Your Normal!”…and let me tell ya, that was NOT pretty…It was WAR for about a week! We have always tried to not use words like “Normal” because, well lets face it, in this house, “Normal” is boring. We have tried to teach the kids to celebrate their differences, rejoice in their strengths, to stop and slow down, to enjoy the smallest of moments.

As we head into another school year, It delights my heart to see my Oldest LOVING school again. She has dreaded school since 2nd grade. I have not seen her THIS excited about school in a LONG time! The Boy informed me taht the Ninja Turtles and Jedi need to stop school because school is dangerous, and the youngest told me that “she is just terrible at everything school related”. It is going to be another interesting, challenging year. I am ready though…Ready to fight if need be, to do whatever I can to make sure my kids have a good year, and get the education they need, with the supports in place to ensure they do the best THEY Can to their Individual Abilities. At the end of the day, that is all I can do. With Lots of Love, Prayer, and Patience, this too shall pass.

 

Priceless

This weekend was Memorial Day Weekend, and for me it was an emotional one. Memories of childhood raced back to my mind, and I longed for simpler days…for Community Parades, and BBQ’s, Memorial wreath Ceremonies, small town USA celebrating our Nation’s True heros in a BIG way. There are other Factors in place that added to my rollercoaster of emotions this weekend…..Autism, Chaos of the school year winding to a close, kids routines all out of whack, and much more. Lets Face it, I was a MESS this weekend, and the tears flowed freely.

Yesterday, in the middle of all the tears, the ups and downs, the storms raging around me, God gave me a Beautiful Priceless Gift…..

My Youngest wanted to go outside and play in the sprinkler, so outside we went. She was having fun, but was sad that her older two siblings did not want to play with her. This was par for the course, as they are both on the spectrum and are usually content in their own worlds. The next thing I knew, my son came flying out the door in his swim suit, and for the next two hours I watched Him interact with his little sister. I got lost in teh harmony of thier laughter, and relished in the beauty of my youngest two children enjoying the day…together, without fighting, or whining, and of course, I took a Bazillion Photos….cause, well Like my husband likes to say, my camera is my 3rd eye!

When I pulled the Pictures off my Camera late last night, exhausted and ready to go to bed, I found one that captured the priceless beauty of the day perfectly….

There is SO Much I love about this Photo…
the fact that My Princess got QUALITY time with her Big Brother…
who is usually in his own world…
It’s Moments like this that melt my heart,
 that make all my tears worthwhile,
 that remind me that no matter how hard it gets,
 it IS worth every struggle,
 every fight,
every tear,
every sleepless night….
The Giggles and HOURS of Laughter that led to this Photo…
It reminded me that while we may be poor by the worlds standards,
We are rich and blessed beyond measure with priceless treasures that no money can buy.
 I am SO thankful that even in the midst of life’s darkest storms,
God blesses me with moments like this…
a reminder of what is truly important.

Autism Awareness~30 Days of Snapshots 2012: Day 23

Almost a Year ago we Packed up everything we owned and moved. We Didn’t move Far. We Moved because we needed a bigger house. When we moved we left behind something Money can NEVER buy, something FAR more precious than a Bigger house, FAR more Valuable than all the possesions in the world. We Left behind a Circle or Friends who Love my kids. These Friends do not see Disability, do not see age, do not see color, they are just FRIENDS. Yesterday we took the kids over there for a visit, and it was the Highlight of my weekend.

My Facebook Status Yesterday ( Dak got me up at 4am and I was EXHAUSTED): Highlight of My weekend….took the kids over to Visit their Friends on the Court today….Watching Dak PARTICIPATE, Take Turns, and Play Duck Duck Goose on the Trampoline makes the lack of sleep, coffee overdose, and no Nap ALL Worthwhile!!!!! ( and YES I took Photos :P )

This group of kids, with mine included ranges in age from 6 to 14. Two of them are autistic, one of them is fighting Cancer, NONE of this slows them down. When they are together, it’s like it all just fades away. Sure they have moments when they fight…that’s kids for you, BUT NOBODY Messes with them.

If This is our Future, then I would say we are in good hands…because of Kids like these…

.♥Playing Duck Duck Goose ♥

( and yes, Dakman not only took turns, but Participated the WHOLE time, Interacting, laughing, smiling)

Autism Awareness~30 Days of Snapshots 2012: Day 14

Author Note: This should have been published yesterday, but I had to finish the Photos before I could post it

My Facebook Status after Baseball Today: “Home from Dak’s Miracle League Baseball Game. LOVE Saturdays for SO many reasons! I Get to watch My boy play Baseball, I get to spend time with other Parents who Understand the roller Coaster that is raising a Special Needs Child, AND I get to watch my Girls interact with thier Friends who understand thier Roles as Siblings….Miracle League is Truly one of the Biggest Blessings in my Life.”

Miracle League Baseball because “Every Child Deserves A Chance to Play Baseball.”

As a Mom of Special needs children, This truly is one of the Biggest Blessings in My Life.

It has become more than just watching my son get a chance to play baseball…

 it has become something more….

a chance for me to talk to other moms who know what it is like to love a child with special needs….

 it has become a way for my husband to connect with his son…

 to watch them do something we thought they may never get to do together….

It has become a way for my “NT” child to connect with other “NT” siblings who understand what she faces with special needs siblings….

It has become more than just a game, it’s a community, a family, and I am blessed to be a part of it….

♥I will leave you with this Photo…

one of my favorite moments…

Dakota steals home so He can go sit down in the dug out and get a drink

( He used to just walk off the feild, so This is progress  :P ) ♥

♥ and In Closing…The Miracle League Song…

I simply do not have the words to Thank all of the people who work so hard every year to make this happen…

The Buddies who volunteer to help the kids who need help…

the coaches…

The Businesses and churches who sponsor teams….

The amazing woman who handles all the coordinating, organizing…

Thank you each and every one for giving parents like me one of the greatest Gifts in the world…

Autism Awareness~30 Days of Snapshots 2012: Day 10

Ok, so My goal to post everyday isn’t going so well this year. The challenges of having two teenagers on the autism spectrum in the house are, well…overwhelming at times. We have seen regression in many areas…behavior issues we have not seen in several years have returned. To say I am exhausted would be a VAST understatement!

Today as I logged in to Facebook, I saw a Blog post that struck a chord with me, Hate the Autism/ Hate the Child?  It got me thinking, and I mean REALLY thinking. I have said in the past that my kids don’t need “fixing”, that they are not Broke, just wired different, and I stand by that statement. Does that mean though, that I LIKE every behavior? No…There ARE things they do that I would change. My Heart aches when my son can’t tell me what is bothering Him, and yet I KNOW something is wrong. And that gut wrenching fear that hits when He decides to take off from school, church, or home…yeah I could live without that. It is no different than when I tell my youngest to stop whining, or some other behavior she should not be doing. I Guess what I am saying is this…I Love ALL three of my kids, in SPITE of Autism, in SPITE of those behaviors that I don’t like. God made them EACH Special, and regardless of their challenges, they are ALL Blessings. There are days when my Patience is SHOT, when I want to scream ” I Can’t TAKE IT ANYMORE!”, when I just want to go off and hide somewhere.

Yes, There are GOOD things loving a child with Autism has taught me…like how to appreciate the simple things, to take life at a slower pace, the value of a smile, a hug….One of my favcorite quotes is…

“You can complain because roses have thorns,

or you can rejoice because thorns have roses”

I have learned that wether it is with my kids, in my marraige, or in life in general If all I focus on is the Negative, I am going to be miserable, but I Can’t ignore the Bad all together either. Sometimes to see the Rainbow, one has to go through the storm first.  This past weekend, my Husband and I celebrated our 16th Wedding Anniversary. The road has not been easy, we have had our share of challenges, fights, and struggles, but we have learned a lot along the way….

Lessons learned in the 16 years I have been married to the AMAZING Man God Brought into my life….

 1.) NEVER fight in front of the kids

 2.) I MUST respect my Husband and Honor HIS Leadership. God placed Him as the Head of Our Household.

 3.) HONEST Open communication is KEY.

 4.) Resorting to name calling and fighting dirty won’t accomplish anything.

 5.) Don’t go to bed angry.

 6.) Even after 16 years, It is still fun to flirt with my husband.

 7.) No Matter how hard things seem, He is always there for me, I can depend on Him.

 8.) Without Trust, things unravel quickly.

 9.) I get more help with the kids if when He gets off work I don’t ambush Him as soon as He walks in the door. Give Him time to decompress first.

 10.) He needs “Alone time” as much as I do.

 11.) Submitting to His leadership does not make me weak, It is what God called me to do, and it actually makes me stronger. (Ephesians 5:22-33)

 12.) He can’t read my mind…If something is bothering me I need to TELL him, without backing him into a corner.

 13.) He worries about the kids as much as I do, He just expresses it differently

 14.) There is nothing wrong with being married for 16 years and still acting like newlyweds!!

15.) Even though I am a stay at home mom, that doesn’t mean I should stop dressing up for my husband.

 16.) I Love Him more today than I did when we met. The road has not been easy, but Walking it with Him by my side makes it all worthwhile.

 Our anniversary is April 6th….

16 years ago a Marine from Alabama and a Marine from Upstate NY said “I do” in North Carolina…

I Love you “Bama”,

For better or worse, for richer or poorer, in sickness and in health, till death do us part

 I am so Thankful God Brought you into my world in the middle of the desert in California!